Description
1. Introduction Alice Rushforth and Harry Selker Part I Transforming Research with Broad Engagement 2. The Transformative Power of Broadly Engaged Team Science: A Mother’s Quest to Understand PXE Sharon Terry 3. Broadly Engaged Team Science in Neonatal Research Jonathan M. Davis 4. Patient Advocates in Cancer Care: A Rich Tradition and Evolving Role Susan K. Parsons 5. National Kidney Foundation Patient Network Silvia Ferr, Silvia Titan and Lesley A. Inker 6. Broadly Engaged Team Science Comes to Life in a Design Lab Marisha E. Palm, Harry Selker, Theodora Cohen, Kenneth Kaitin, Kay Larholt, Mark Trusheim and Gigi Hirsch 7. Tufts Center for the Study of Drug Development Employs Broadly Engaged Team Science to Explore the Challenges of Pharmaceutical Research and Development Kenneth I. Kaitin and Kenneth Getz Part II. Integrating Communities and Stakeholders into Broadly Engaged Team Science 8. Social Movements and Stakeholder Engagement Peter Levine 9. A Basic Scientist’s Journey: Engaging Public Stakeholders Through Civic Science Jonathan Garlick 10. Lessons in Public Involvement from Across the Pond Marisha E. Palm, Tina Coldham and David Evans 11. Leveling the Playing Field for Community Stakeholders: Examining Practices to Improve Engagement and Address Power Dynamics Sara Folta, Linda B. Hudson, Beverly Cohen and Apolo Ctala 12. A Theory of Stakeholder-driven Community Diffusion Erin Hennessy and Christina Economos 13. Monitoring and Evaluation of Stakeholder Engagement in Health Research Thomas W. Concannon and Marisha E. Palm Part III. Applying Broadly Engaged Team Science: Case Studies 14. Insiders and Outsiders: A Case Study of Fostering Research Partnerships between Academic Health Centers and Corrections Institutions Alysse G. Wurcel, Julia Zubiago, Deirdre J. Burke, Karen M. Freund, Stephenie Lemon, Curt Beckwith, John B. Wong, Amy LeClair and Thomas W. Concannon 15. Responding to the Community: HOPE (Healthy Outcomes from Positive Experiences) Robert Sege, Dina Burstein and Chloe Yang 16. Students as Key Collaborators in Tackling Early Stage Research Ideas Alissa Dangel and Mallory Whalen 17. Engaging Stakeholders to Decrease Study Start-up Delays Denise H. Daudelin, Alyssa Cabrera, Alicea Riley and Jaime Chisholm 18. Health Literacy and Broadly Engaged Team Science: How One Study Team Used Plain Language Principles to Share Findings with Affected Communities Sabrina Kurtz-Rossi, Doug Brugge and Sylvia Baedorf Kassis 19. Utilizing Patient Navigators to Promote Equitable and Accountable Research MingqianLin, Douglas Hackenyos, Fengqing Wang, Nicole Savidge, Angela Wimmer, Antonia Maloney, Susan Mohebbi, Michele Guard and Susan K. Parsons 20. Asian American Research in the Post-Atlanta Era: Driving Community-engaged Research That Is More Meaningful, Responsive, and Actionable for Local Communities Carolyn Leung Rubin, Ben Hires, Dawn Sauma and Yoyo Yau 21. Stakeholder Engagement in Predictive Model Development for Clinical Decision Support Denise H. Daudelin Part IV. Creating an Institutional Environment of Support for Broadly Engaged Team Science 22. Research Administration Practices for Proposal Development and Post-Award Management of Stakeholders and Community Participants Carol Seidel 23. Starting Off Right: Supporting Community Involvement in the Evaluation of Research Proposals Robert Sege and Marguerite Fenwood 24. Role of Broadly Engaged Team Science in the Inclusion of Minority Populations as Research Participants and in All Roles on Research Teams Pamela B. Davis and Harry P. Selker 25. Rewarding Team Science in Tenure and Promotion Practices: An Operational Imperative for the Academic Research Enterprise of the 21st Century Augusta Rohrbach and Caroline Attardo Genco Epilogue Debra Lerner, Thomas W. Concannon and Marisha E. Palm Resource Guide
